PRESS PLAY >> THE ALTERS (I WILL FEAR NO MORE) After writing several blogs, articles, and posts about Ed’s Polycythemia Vera journey, I was contacted by a wonderful woman who read […]
As we continue on this roller coaster ride with Polycythemia Vera, we learn more along the way. Ed had a good week this week. We are hopeful and relieved for the first […]
Hi everyone! Yesterday was Ed’s follow up with his MPN (a doctor that specializes in Myeloproliferative neoplasms (MPNs), which are also known as myeloproliferative disorders). Good news and not so good news […]
(Audio – DropKick Murphys – You’ll Never Walk Alone) Press Play Here we go again, a year after Ed’s last phlebotomy for Polycythemia Vera, he will receive another phlebotomy next week. […]
COLORFUL CHAOS THE JOURNEY 
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