By the 4th hour of my Rituxan infusion, I was so tired. I could feel the medication working through my body. Hot and cold, then wanting to crawl out of my skin. […]
Round 2 of Round 2 of Rituxan- An Update
Idiosyncrasies or For My Health? Living With Invisible Illnesses
As we are riding through Douthat State Park, we are talking about the lake, the man made beach, camping, hiking, and my little quirks. I have these little things about me which […]
Raising Awareness.. Are You Listening, Learning, or Going Posting To Post?
Raising Awareness.. Many people are quick to jump on the band wagon and post on days or months for specific illnesses or “Awareness” ! Why? Why not everyday? The DO’s & the […]
Patiently Waiting for Ed’s Follow Up Appointment
I sit in the parking deck once again. Patiently waiting, feeling helpless as Ed goes into UVA Emily Couric Cancer Clinic to have labs drawn and to see the MPN. As I […]
I’m Fine, Right?
As much as I would love to begin this post with a wide variety of positive memes and quotes, it is just not in me today. The struggle is real and building. […]
Chronic Illness Can Destroy Your Life
A friend in need gf.me/u/xmvpmv Help with a GoFundMe Campaign My friend Kathy is a hardworking designer! For many years she has worked as a kitchen designer and won various awards doing […]
Disabilities & Mental Health Introduction
Disabilities & Mental Health Introduction IT IS NOT ALL IN BLACK AND WHITE – SHEDDING THE LIGHT Disabilities and mental health awareness are very touchy subjects with me, as is for many […]
COLORFUL CHAOS THE JOURNEY 
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