A little RA lesson for those that may want to know more about infusion medications and an update on what is going on with my treatment. Biologics and non-biologics! There are plenty […]
My Latest RA Update
Round 2 of Round 2 of Rituxan- An Update
By the 4th hour of my Rituxan infusion, I was so tired. I could feel the medication working through my body. Hot and cold, then wanting to crawl out of my skin. […]
Idiosyncrasies or For My Health? Living With Invisible Illnesses
As we are riding through Douthat State Park, we are talking about the lake, the man made beach, camping, hiking, and my little quirks. I have these little things about me which […]
In The End, We Are All Just Stories
I just have to say this: COVID IS NOT GETTING BETTER There are many strains evolving, this is normal Our healthcare system does NOT have all of the answers, be patient Our […]
Raising Awareness.. Are You Listening, Learning, or Going Posting To Post?
Raising Awareness.. Many people are quick to jump on the band wagon and post on days or months for specific illnesses or “Awareness” ! Why? Why not everyday? The DO’s & the […]
My Current Battle With Gastroparesis
Originally in December of 2019, I posted about gastroparesis. Since that time, I do not believe that I have followed up with you all. The last 6-7 days have been brutal to […]
September Topic 2 – Rheumatoid Arthritis Awareness – What is Chronic/ Invisible Illness? (Re-Post With Updates)
What is chronic illness? What is an invisible illness? Often times our family, our friends, our coworkers, acquaintances, and even our partners do not understand what chronic illness is, much less what […]
Infusion Preparation & My RA Story Re-Post (With Updates)
PRESS PLAY > CROWDER – RUN DEVIL RUN As I prepare for my second try with Rituxan, I cannot help but think about everything I have been through over the years, the […]
She Is Not Just Surviving, She Is Thriving Deb’s Journey With PV & Breast Cancer
PRESS PLAY >> THE ALTERS (I WILL FEAR NO MORE) After writing several blogs, articles, and posts about Ed’s Polycythemia Vera journey, I was contacted by a wonderful woman who read […]
His PV Journey Continues
As we continue on this roller coaster ride with Polycythemia Vera, we learn more along the way. Ed had a good week this week. We are hopeful and relieved for the first […]
COLORFUL CHAOS THE JOURNEY 
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