What is chronic illness? What is an invisible illness? Often times our family, our friends, our coworkers, acquaintances, and even our partners do not understand what chronic illness is, much less what […]
Colorful Chaos The Journey
This blog covers various topics and issues. Some are personal in nature. Before publishing each blog, WE (both Ed and I), have discussed the content. We both have given permissible use!
Not everything is always in black and white. Join us on our journey as we battle incurable invisible illnesses. We are seeking mental freedom as we prepare to unwind and unravel amongst nature. Raising awareness for Polycythemia Vera and Invisible Illnesses such as Mental Health, Rheumatoid Arthritis, Fibromyalgia, Diabetes, along with a variety of other “silent” struggles that we may deal with along the way, will be a focal point for us.
We are not going to let these illnesses hold us down, even if this means dying on the road, we will live while dying!
During our journey we need support. The support of each other, family, friends, followers, readers!
Join us along the way as our lives take twists and turns.
PRESS PLAY > CROWDER – RUN DEVIL RUN As I prepare for my second try with Rituxan, I cannot help but think about everything I have been through over the years, the […]
Press Play>> Crowder (Back to the Garden) Do you ever feel as though you are fighting to just keep your head above water? Whether it be financially, physically, emotionally, or […]
I must admit, I’m not an avid shopper when it comes to myself. I’m quite particular. Frugal! When I was above middle class monetarily, I did not think too much about spending […]
What is endometriosis? Endometriosis is a chronic condition, and as such, there is no cure. However, it can be treated to control the pain and prevent the symptoms from worsening. One treatment […]
Often times we may go through social media or we may observe others around us while on an outing and think, “wow, that couple looks so in love.” We might even feel […]
PRESS PLAY >> THE ALTERS (I WILL FEAR NO MORE) After writing several blogs, articles, and posts about Ed’s Polycythemia Vera journey, I was contacted by a wonderful woman who read […]
https://music.apple.com/us/album/dear-hate-feat-vince-gill/1292305143?i=1292305145 Dear hate, You are not my friend. You have destroyed relationships, you have destroyed hearts, you have destroyed people. Amongst your destruction includes families, churches, cities, stares, and countries! Dear hate, […]
I sit in the parking deck once again. Patiently waiting, feeling helpless as Ed goes into UVA Emily Couric Cancer Clinic to have labs drawn and to see the MPN. As I […]