Ed’s Polycythemia Vera Update Joking – We love Ed’s nurses, they are great! Yesterday was Ed’s monthly “blood-work check” up. His doctor ordered monthly visits again after the last clinical visit. We […]
Colorful Chaos The Journey
This blog covers various topics and issues. Some are personal in nature. Before publishing each blog, WE (both Ed and I), have discussed the content. We both have given permissible use!
Not everything is always in black and white. Join us on our journey as we battle incurable invisible illnesses. We are seeking mental freedom as we prepare to unwind and unravel amongst nature. Raising awareness for Polycythemia Vera and Invisible Illnesses such as Mental Health, Rheumatoid Arthritis, Fibromyalgia, Diabetes, along with a variety of other “silent” struggles that we may deal with along the way, will be a focal point for us.
We are not going to let these illnesses hold us down, even if this means dying on the road, we will live while dying!
During our journey we need support. The support of each other, family, friends, followers, readers!
Join us along the way as our lives take twists and turns.
This Poem was written in 1999 for my step-father. He is a recovering alcoholic. Praise God, sober for 20 years now. Saved As I walked through the desert without a drop of […]
When I look around all I see is hustle and bustle of uncertainty I ask myself how this can be […]
Runaway Heart Runaway heart and runaway mind Give yourself a break, it will come in due time Just pace your steps a little along the way Enjoying the best moments every day […]
The Battle Within Did you leave me or did I runaway I don’t know if it is the darkness of night or the light of the day I am so confused and […]
That Little Girl There was a little girl with light blonde hair She played with her friend, never having a care When she was ten her entire world changed She found herself […]
I Will See You Through I will see you through in your times of heartbreak and your times of pain. I will see you through the storms and the coldest rain. I […]
Voices of shouting with such distress, the beat of my hear begins to progress Louder the violence become to my ears, the sounds of panic growing near Whip of a blade and […]
The Call of Death Feeling the presence, feeling the vibes My heart is pounding, so I cannot describe The evil I see when I look upon, the dawn, the night, the sight, […]
The story behind this poem: I was 14 when I gave birth to my first son & 17 when I gave birth to my second son. Their biological father was very abusive, […]